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Writer's picturelasanteranyc

Life Update: Mami the matriarch!


What’s up fam! For many years I have served the community. I share things about my life in hopes that it may serve you in some way. That it may lift you in some way. That it may teach you in some way. That it may love on you in some way. I want to open up about something deeply personal to me. My mother, who I love with everything that I am, has been diagnosed with dementia and Alzheimer's. It's been FCKING devastating. It has been emotionally draining for all of us, but I imagine it’s even more terrifying for her. The matriarch of our family. The rock. The one who has held everything down.

One of the most difficult experiences to witness is when my mother goes to find something, only to become disoriented and unable to locate it. It was hard initially when I was the one accused of stealing things she could not locate (especially when I don’t live in the country). It breaks my heart to see her confusion and frustration. 😢 I've noticed her walking into a room, only to forget why she initially entered. Sometimes when we are eating she feels far away from us. It's tough, especially when my dad, who had envisioned a peaceful retirement, filled with travel with his beloved—now furious, getting angry because this isn't that life he expected. This isn’t what he wanted. The woman who organized our entire world is in many ways distant (I don’t want to say she’s not here because she is very much here—thank God.)😔

During this journey, I've come to realize the importance of empathy, patience, and understanding. I'm learning to cherish every moment. My middle sister is huge on making memories. We take her to all her favorite spots and give her her favorite sweets. I get so happy when she remembers my name and the names of our children (her grandchildren).

While this moment our lives is challenging, we are determined to provide mom with a comfortable happy life. We laugh, dance, reminisce, and are creating new memories together. 💭✨


What I am coming to understand right now is the importance of holding onto my faith, and be here for my family as much as I can. Be present. Value the ones you love while they are here.


If you or someone you know is going through a similar experience, please remember that there is strength in sharing your story and seeking support. Email me. DM me. Let's raise awareness, spread compassion, and foster a more inclusive world for those affected by these conditions. We have been so conditioned to suffer in silence and not share the personal out of shame. I love my mother and we have nothing to be ashamed of. 🙏🏾💜

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1 Comment


Guest
Aug 30, 2023

Sending love your way ❤️ I know how difficult this is. Cherish every lucid moment! I was fortunate enough to have a conversation with my Abuelo before he became non verbal. This meant the world to me. We were never close and in the end he asked for forgiveness 😞Praying for you and your family 🙏

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